Marfan Awareness Initiatives The following information is set up as downloadable file links. You may open each one and read the information, or if you choose, you may download the file. 1. Physican Awareness Committee Letter 2. Loeys Dietz Aortic Aneurysm Syndrome 3. Kathy Ackroyd Letter 4. Disability Workshop-Bios. JR- KK Contact Info 5. Update-Physicians Awareness 6. Update-PAC -October, 2009

The CELEBRATION of MARFAN LIFE and HISTORY FUNDRAISER information is available for downloading below.   CMLH II FLYER * We held CMLH III on October 5, 2013.  We held CMLH IV on October 15, 2016.  We hope to hold futue CMLH's in the near future.    ~Feel free to contact me at jrmarfan58@aol.com for more details on the event.