Marfan Awareness Initiatives The following information is set up as downloadable file links. You may open each one and read the information, or if you choose, you may download the file.
1. Physican Awareness Committee Letter
2. Loeys Dietz Aortic Aneurysm Syndrome
3. Kathy Ackroyd Letter
4. Disability Workshop-Bios. JR- KK Contact Info
5. Update-Physicians Awareness
6. Update-PAC -October, 2009
The CELEBRATION of MARFAN LIFE and HISTORY FUNDRAISER information is available for downloading below.
1. CMLH EVENT