MASSACHUSETTS CHAPTER OF THE MARFAN
FOUNDATION
Former PRESIDENT - JON RODIS (2009-2022)
CELL 857-244-4522
E-MAIL: jrmarfan58@aol.com
and jrmarfan58@comcast.net
JR Website: www.jrmarfan58.com
EDS and CTD New England/Massachusetts Support Group
Founder and Co-leader: Jon Rodis
Cell: 857-244-4522
ALSO CONTACT JON RODIS IN REFERENCE TO THE
BELOW GROUPS AND PROGRAMS
1. PHYSICIAN AWARENESS COMMITTEE-MARFANS
2. PHYSICIAN AWARENESS COMMITTEE-EDS
3. DISABILITY ADVOCACY FOR RARE DISORDERS
4. MEDICAL ADVOCACY FOR RARE DISORDERS
