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- File completed form with
your local Social Security office. Make sure to always complete forms in full. Keep copies as back-up.
- Call regarding
state disability funds.
- Contact the National Marfan Foundation - after the first denial of benefits - request a letter
of support.
- Make appointment with personal physician - advise of filing.
- Compile Marfan support info - web
pages, letters, research, etc.
- See Marfan doctors for additional support and follow-up.
- Get copies of all
your medical records. Keep copies of everything in a folder.
- Look for Marfan people within your state who have been
approved.
- Once you have been denied the second time, consult a disability attorney that has several years experience
and speak to the attorney immediately.
- Make sure attorney has all info - medical records and all above.
MOST
IMPORTANT - Keep a daily health journal that lists all your symptoms, appointments, results, INR's, notes, etc.
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