THANK YOU
I would like
to take this opportunity to say Thank You to the following individuals for their help.
My wife, Kathleen, who
is by my side, supporting me in my quest to make a difference in helping sufferers of Marfan, Loeys-Dietz, Ehlers-Danlos and
related syndromes/disorders. As a lawyer, she has aided me in applying for disability and helping so many others navigate
the social security system. She is willing to help other Marfan, EDS and Loeys-Dietz and related disorder individuals
and families with her legal expertise. She has assisted me in helping others not only with social security disability
but many other legal/family challenges over the past 25 years. You can contact Kathleen at kkanelaw@comcast.net for
more information on how she can help you.
My mother, family, and friends who have been at my side through the worst of my illness.
I want to honor and thank my mother-in-law
Sis Kane, who passed away during the summer of 2013, for not only in helping me in writing and maintaining this website
but her love and passion for the Marfan and related disorder causes and the overall advocacy work that I do. She has
been a great inspiration to me and I will never forget her love and support. I love you Sis!.
A special Thank You to the
following:
Dr, Josh Dubow - BIDMC - Primary
Dr. James Heckman - BIDMC - Former Primary
Dr. Joseph Kannam - BIDMC-Cardio
Dr. Dwight Robinson - MGH-Rheumatology
Dr. Robert Johnson - Surgeon - Saint Louis University
Beth Israel
Deaconess Emergency Unit, Boston, MA
Suffolk University - Boston, MA
Dr. Michael Murray - Geisenger Health Systems
Dr. Ron Lacro - Childrens
- Marfan Program
Dr. Michael Singh
- Childrens and Brigham Marfan Programs
Dr. Jacqueline Wolf -BIDMC - Gastroenterology
Amy Kaplan, former RN-Manager-NMF's/Marfan Foundation's
Information and Resource Center
If my story can help just one individual that suffers
from Marfan Syndrome
and/or related disorders, then I will be happy.
Thank you for your interest in my web site.
Please do not
hesitate to contact me at anytime.
My email address irmarfan58@aol.com or wsalmgcdjm@aol.com.
