I would like to take this opportunity to say Thank You to the following individuals for their help.
Kathleen, who is by my side, supporting me in my quest to make a difference in helping sufferers of Marfan, Loeys-Dietz, Ehlers-Danlos
and related syndromes/disorders. As a lawyer, she has aided me in applying for disability. She is willing to help other Marfan
and related disorder individuals with her legal expertise. She has also assisted me in helping others through the disability
process. Contact Kathleen at http//www.skb-law.com.
My mother, family, and friends who have been at my side through the worst of my illness.
I want to honor
and thank my mother-in-law Sis Kane, who passed away during the summer of 2013, for not only in helping me in writing
and maintaining this website but her love and passion for the Marfan cause and the overall advocacy work that I do. She has
been a great inspiration to me and I will never forget her love and support. I love you Sis!.
Thank You to the following:
Karen & John Beliveau
Kannam - Beth Israel Hospital-Cardio
Dr. Dwight Robinson - MGH-Rheumatology
Dr. Robert Johnson - Surgeon - Saint
Dr. Chin Hur - MGH-Gastroenterology
Dr. Aleena Banerji - MGH -Immunology
Hospital Boston, MA
Beth Israel Deaconess Emergency Unit, Boston, MA
Suffolk University - Boston, MA
Dr. Michael Murray - Geisenger Health Systems
Dr. Ron Lacro - Childrens - Marfan Program
Dr. Michael Singh - Childrens and Brigham Marfan Programs
Dr. Jacqueline Wolf -BIDMC - Gastroenterology
Amy Kaplan, former RN-Manager-NMF's/Marfan Foundation's
Information and Resource Center
If my story can help just one individual that suffers
from Marfan Syndrome
and related disorders, then I will be happy.
Thank you for your interest in my web site.
Please do not hesitate
to contact me at anytime.
My email address JRMARFAN58@aol.com or JRMARFAN58@comcast.net.